Voices 4 Youth in Pain

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    • What is chronic pain?
    • Healthcare Support
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Voices 4 Youth in Pain

Voices 4 Youth in PainVoices 4 Youth in PainVoices 4 Youth in Pain
  • Home
  • What is chronic pain?
  • Healthcare Support
  • School Resources
  • About Us
Girl sitting on floor cross-legged in front of school lockers with her head in her hands.

School Resources

Resources to help navigate school accommodations and help school staff better understand your chronic pain.

Every child has the right to a high-quality education

Pain can make it more difficult to attend and succeed in school. If your child needs extra help or support because of medical needs, like pain, the school must provide accommodations. 

Boy sitting at desk with his head in his hands.
Click here to see our school resources
Boy and teacher sitting at desk looking at laptop computer.

What are school accommodations?

Changes that can be made to help your child learn or allow your child to be able to participate in the regular school life, such as after-school activities. Accommodations do not change the content of the education. Rather, accommodations make it easier for the student to learn and participate in the same ways as their classmates. For example, a student may be allowed extra time to complete tests.

The law

The Americans with Disabilities Act and Section 504 of the Rehabilitation Act of 1973 are the laws that require schools to give special help to children with medical needs.


To learn more visit https://www.ada.gov/ 

Child, parent, and teacher sitting at a table talking.

How do I request accommodations?

Contact the school and ask for a meeting to talk about your child’s medical issues and educational needs.


The meeting should include you and the school staff who will be working with your child – administrators, teachers, nurse, etc.


Your doctor may be willing to provide useful information about your child’s medical condition. You could also request that a member of your child's healthcare team, such as a nurse, join the meeting to further advocate for your child.


Keep a log of everything in writing. Your log should include the meeting date, where it took place, the names and positions of the people who were there and what they promised to do. Write down contact information for everyone who came to the meeting. Include the date of the next meeting.

What will happen next?

You will talk about the child’s disability and their schooling.


The meeting results in a “504 Plan”. This plan lists the help or “accommodations” that your child will get at school. Every child is different, so every 504 Plan is different.

Boy sitting at desk looking confident.

Everyone at school must follow the 504 Plan

This includes the classroom teacher, substitutes, cafeteria staff, gym teacher, recess staff, etc.

Ensuring participation

Children with chronic pain have the right to participate in all school activities. This includes trips, field days, etc.


If necessary, the school must make special plans so that your child can participate.

Continue to be involved

Talk to your child. Ask your child about learning. Talk about successes and challenges.


Talk to the school and the teachers. Make sure your child is getting help. Schedule a meeting if there are problems or if your child needs more help. 

Two girls smiling in a library, one girl is in a wheelchair.

Examples of accommodations

  • Unlimited access to school nurse
  • Access to extra fluids
  • Unlimited access to bathroom
  • Extra set of books at home
  • Special transportation
  • Modified recess
  • Emergency plan for fire drill or other school emergencies
  • Approved absences from school based on medical needs
  • Support for missed academic work due to medical needs
  • Tutoring
  • Extra time for tests
  • Access to assisted technology (computers, etc.)
  • Modified school day
  • Modified course work
  • Modified physical activity
  • Extended year programming

School Advocacy Resources

How to Check in with Your Child's School Accommodations (pdf)

Download

Chronic Pain in Students: A Quick Reference for School Nurses (pdf)

Download

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